Tuesday, 26 April 2011

Welcome to My World

For a while now I have wanted to have a blog. I love to write and I find it very therapeutic but fifteen and a half years ago when my life turned upside down I lost my confidence and my energy to write like I wanted to.

The time has finally arrived and here I am ready to write and and share with the world what it is like to live with a child who has special needs.What it is like to have a child who was born perfectly normal and then to sustain brain damage at the age of 5 1/2 months. What it is like to watch your child fight to live and fight to stay alive.

Being a parent of a special needs child can be very lonely, you want to stay in your old world, with your old friends and live the life that you had mapped out before you. All of a sudden you find yourself in this new world with strangers who are friendly but aren't necessarily your friends. You don't know what you are doing and you just wish you could wake up and it would all just go away.

As time passes you get used to your new world, you do make real friends and if you are lucky some of your old friends from your old life stay and support you. You make new plans and map a new life. You actually start to smile again and genuinely enjoy life again especially when you learn to see the positives and see the negatives as only challenges which need to be overcome.

What I have learnt is that everything comes in waves and today may be a good day while tomorrow may be difficult. This is true for everyone's lives not just my new life. I have learnt to ride the waves, embracing the good and hanging on during the bad.

Well, there you go, I survived my first blog and I enjoyed writing it. Hopefully there will be many more to come but until then ........ Stay wonderful and thanks for reading.


  1. Your an amazing mum, and an inspiration to those you know,I know the road can be tough and there are probably tough times to come, but with those challenges, there will be smiles, and happy ness, and laughter..and then you will see him smile, take your hand and ask for that millionth cuddle, and you will see, for that alone. the ride has been worth it.

  2. Thank you Sandy for your beautiful words and for being my first ever comment.

  3. Jane, I admire your strength, your creativity, your positivity & you are an inspiration to me. You are uniquely you & very special indeed.

  4. Thank you Sue for your beautiful words.