Today was our first session after the third QEEG. So today was the first proper session using the hand machine.
We started with the hand machine and I wasn't prepared for being left on my own with Cameron to supervise him and do therapy with him for ten minutes. Those ten minutes felt more like twenty.
I think somebody forgot to explain what was going to happen. So when I was asked if I'd brought a book with me or was I happy to use the book in the room I was a little stunned and caught off guard. All of a sudden seeing parents walk out of appointments with books and ipads made sense. I'd often wondered why.
Each session Cameron will be wired to the machine through his left hand. The treatment machine doesn't use sticky pads like the machine we'd used on Saturday, instead it uses wet sponges and a bandage to keep everything in place. Oh no, my brain was saying as our doctor walked out of the room leaving us to it.
Immediately Cameron's fingers started to twitch and this stunned and troubled Cameron. His fingers didn't twitch on Saturday. Plus the sponges were dripping and Cameron was unhappy that they were dripping. Thankfully I had paid attention on Saturday and knew that the goal during the hand machine was to get Cameron to find colours and animals but the book I was using had excessively busy pages which I think were too busy for Cameron to cope with at the moment and were full of every object imaginable. He was also supposed to use his left hand that had twitching fingers to point at the colours I was asking him to find. He wanted to use his right.
Cameron didn't really settle properly at any point while the machine was on. He will improve but it was an unexpected jolt from our usual relaxed appointments and I didn't feel very comfortable.
To his credit Cameron didn't rip the bandage off or pull the cords out. He did give up on the book so in the end we just had to sit there.
However a lot of praise is owed to My Little Angel. She was amazing. She watched everything as it was being set up and quickly realized I couldn't hold the book up for Cameron, find items for Cameron to find, restrain Cameron from the cords and bandage, point to pictures and restrain Cameron's right hand all at the same time as wipe away the water and comfort and reassure Cameron whilst keeping him focused on the task at hand.
As I struggled and had bad therapy session and hospital flashbacks My Little Angel climbed up next to Cameron and started speaking in a beautiful calm, comforting voice. She held his right hand and started pointing to pictures to help me focus Cameron. She reminded him to use his left hand and wiped the water from his leg. She enthusiastically found the pictures we were looking for and playfully had pretend trouble looking for others. She praised Cameron when he found a picture and only encouraged when he didn't. When it all became too much she started to read him a fairy tale to help me keep him seated.
Things will improve as Cameron improves and at least next time I will be prepared - I will take some of Cameron's books. I could have taken the beautiful Playschool colours board book we bought him on Saturday but unfortunately less than 24 hours after we purchased it Cameron had weaved his usual magic. (It's worse now)
I'd like to take the ipad but I don't think the ipad and water should mix which is a shame because I have downloaded some brilliant colour and animal apps. Oh well.
As for my wonderful daughter - she truly is my Angel and if she hadn't been there today it would have been really difficult.